6 months 2 weeks since diagnosis!
Welcome!
Hi, my name is Steve, and this is the story of how my life was turned completely upside down in the space of 24 hours…
I woke up on Monday 18 August 2025 ready to face what I presumed would be a week like any other. 24 hours later, with no warning signs, I was waking up to be told it was suspected I had an incurable form of brain cancer, with an average prognosis of 12 to 18 months.
Here I talk about what happened on that fateful day and what has happened since, as well as sharing some random thoughts during this journey…
My Latest Blog Posts
- The Quiet Power of Kindness
If there’s one thing the last few months have reminded me of, it’s just how much people matter. In difficult times, it’s the kindness, the messages, the small gestures and the quiet support from others that stay with you. And it’s made me think back to another time in my… Read more: The Quiet Power of Kindness - The Greatest Man I Know Turns 85
If you’re lucky in life, you get to know someone who shows you what it really means to be a good person. Someone kind, loyal, strong, and always there when you need them. For me, that person is my dad. And today he turns 85. MY Biggest Supporter He is,… Read more: The Greatest Man I Know Turns 85 - The Hardest Run to the Start Line
Yesterday (Sunday 8 March) I ran the Paddock Wood half-marathon. It wasn’t my fastest, in fact, it was probably my slowest, but it might just be the run I’m most proud of. Not long ago I wasn’t sure when, or if, I’d be standing on a start line again. The… Read more: The Hardest Run to the Start Line - It’s A Wrap
Last Friday (27 February), was my last ever day of work. When I started my first proper job back in 2000, if you told me I would be retiring 26 years later at the age of 46 I would have thought I had struck it lucky and would be free… Read more: It’s A Wrap - Scan 1: The Results
I got the call this morning, a day early, giving me the results of my first scan, and in short it was all positive. My oncologist said the scan shows exactly what they hoped it would after surgery and my first round of treatment, and that there was no sign… Read more: Scan 1: The Results
Steve, you are an inspiration. This journal is amazing and really informative too. And I am so impressed – but not surprised – that you can describe your post-recovery lunch! My best friend had a non-operable glioblastoma, so I am hoping against hope that what’s left of yours is going to behave itself and be more of an inconvenience over the years. Thank you for sharing your journey and keep that positive head on your shoulders.
Love Emily.
Ps. Now is the time to constantly wind up Phill, while you have the upper hand 😉 xxx
Haha, thanks Emily!
I just wanted to say that I really appreciate the blog. My dad has GBM and while his prognosis is worse than yours (he’s a bit older and is unmethylated), it’s very helpful and reassuring to get perspectives from someone dealing with a similar diagnosis. I’m hoping for the very best for you.
Thank you, and I will hope for the best for your dad. Best wishes to you both.